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Research for the Future #14 [February 2023]
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Issue #14
February 2023

Together we can find the answers

A church bell ringer from Lancashire is encouraging people to take part in NHS research into long-Covid, as she is confident that “…together we can find the answers”

Victoria Gibson was an active member of her community until she was struck down with coronavirus twice in 2020. The debilitating symptoms, caused by the virus have left her a 'changed person', with an oxygen machine at home and sometimes being unable to walk from the bedroom to the bathroom.
 
Although making steady progress, she has been forced to give up her favourite hobby, explaining: “I’m the tower captain at my local church and in charge of ringing the bells.  This is something I love to do, especially at Christmas, but I still wasn’t well enough to do it this year.”
 
As she fights back, she is helping researchers who are trying to understand long-Covid and appealing for fellow sufferers to join her. 
 
Victoria enrolled on a study at Salford Royal Hospital, which she said has had a positive impact on her life. She said: “I’d encourage anyone with long-Covid to get involved in research. Not only will you be helping yourself and others, it is a great way to meet other people who have similar stories and can share advice.
 
“Together we can find the answers, we can’t work in isolation. I’m confident we can find something to help all long Covid sufferers. Hopefully before long, I’ll be back at my church, and fit enough to ring the bells!”
 
For more information about the Help BEAT Coronavirus campaign, including studies currently looking for people to take part, please visit our website.

If you're already registered with Research for the Future, and want to help with research into the ongoing problems caused by coronavirus, please update your details:



If you have any difficulties using the online update or want to tell us about any other changes to your details, please contact the office on 0161 206 3636.

News and updates

Health Research Festival

We recently joined forces with colleagues from the Clinical Research Network (CRN) to organise a 'Health Research Festival' in south Manchester.  There was a great attendance from local people, who came to hear about upcoming research, take part in studies and register to hear about future opportunities to get involved.
 
We enjoyed it so much, we're working with the CRN to develop a programme of future events. Keep an eye on our socials for information.

Share your story of taking part in research

Each year, many people take part in NHS and NIHR research through Research for the Future.  Every experience is unique, and your story could inspire others to get involved in research.
 
Patient stories help explain to others what it is like to be involved and take part, and enable us to make sure the patient voice is used to improve future research.
 
If you've taken part in research and would like to share your story, please email research.future@nca.nhs.uk.

Study round-up

Reducing fatigue after long-COVID

Looking for people who have tested positive for Covid-19 to understand fatigue related symptoms experienced by people after infection.
 

Community health services

Looking for people with experience of adult community health services to join a PPI (patient and public involvement) panel focusing  on how community health services influence and affect use of hospital-based services.
 

Path Feel

Looking for people with diabetes (types 1 or 2) and impaired foot sensation (neuropathy) to test the effectiveness of vibrating insoles.
 

GLAD

Looking for people with experience of clinical anxiety and/or depression to understand the influence of genetic and environmental risk factors on these disorders.
 

Chief-PD

Looking for people with Parkinson’s Disease to determine if a certain medication can help prevent falls in people with this condition.
 

HIPtox

Looking for healthy volunteers to investigate the effect of common air pollutants on brain function in people who have family members with brain disorders such as dementia.
 

PREDICT-Meso

Looking for people affected by mesothelioma to join a PPI (patient and public involvement) group focusing mesothelioma research.
 

Diabetes: Anxiety and low mood

Looking for people with diabetes (all types) to complete a short survey to understand why some people with diabetes experience low mood and anxiety.
 

OptiMuscle

Looking for people with breathing pattern disorder or dysfunctional breathing to help develop new treatments by using digital technologies to understand what happens when we breathe.
 

ACE-South Asian

Looking for people from South Asian backgrounds to complete an online survey exploring how difficult childhood experiences can impact health and well-being.
 




View all opportunities currently
recruiting on our website.



Learn more about research we have supported in our Case studies.
                                                

Thank you for your continued interest in Research for the Future.

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